ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

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ALS Topics

ALS Research & Treatments

(43 Viewing)

Discuss the latest ALS-related scientific and medical findings

9,198

120,613

11/12/2024 1:11:36 PM
in Could mechanical stimulation be beneficial in ALS?
by JPLeRouzic

Living with ALS

(8 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,928

16,177

9/10/2024 9:36:05 PM
in mucus
by aabiddiorite

ALS Advocacy

(134 Viewing)

Discuss strategies for increasing public funding and attention

519

3,251

3/15/2024 1:26:43 PM
in The Chill "Black Woods Blizzard Tour...
by mdrdan

Military Service and ALS

Discuss issues relevant to ALS incidence in the military and veteran population

341

1/28/2021 6:40:58 AM
in NR proposed as treatment for Gulf War Illness
by Barbarawanda61

Philosophy and Feedback

(1 Viewing)

Discusses forum philosophy and any comments or suggestions.

162

1,289

1/23/2022 2:39:44 PM
in Poem
by Rlschafferrr

Irrelevant to ALS

Postings deemed irrelevant to ALS by the ALS TDI Research Team

290

3,581

2/20/2024 5:25:38 AM
in ALS & Parkinson's
by JPLeRouzic

Forum
ALS Topics
ALS Research & Treatments (43 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 9,198 Posts: 120,613
Latest Post: 11/12/2024 1:11:36 PM in Could mechanical stimulation be beneficial in ALS? by JPLeRouzic
Living with ALS (8 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,928 Posts: 16,177
Latest Post: 9/10/2024 9:36:05 PM in mucus by aabiddiorite
ALS Advocacy (134 Viewing)
Discuss strategies for increasing public funding and attention
Topics: 519 Posts: 3,251
Latest Post: 3/15/2024 1:26:43 PM in The Chill "Black Woods Blizzard Tour... by mdrdan
Military Service and ALS
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 62 Posts: 341
Latest Post: 1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
Philosophy and Feedback (1 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 162 Posts: 1,289
Latest Post: 1/23/2022 2:39:44 PM in Poem by Rlschafferrr
Irrelevant to ALS
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 290 Posts: 3,581
Latest Post: 2/20/2024 5:25:38 AM in ALS & Parkinson's by JPLeRouzic

Latest Posts
Could mechanical stimulation be beneficial in ALS? by JPLeRouzic (ALS Research & Treatments)	11/12/2024 1:11:36 PM
Ivermectin by murmurat (ALS Research & Treatments)	11/11/2024 11:57:38 AM
Oral Sodium Chlorite by mdrdan (ALS Research & Treatments)	10/17/2024 12:47:25 PM
Known proteins: Cracking the Code by JPLeRouzic (ALS Research & Treatments)	10/12/2024 5:27:58 AM
Artificial Intelligence and ALS by gocurcama (ALS Research & Treatments)	10/9/2024 9:34:08 AM
Nicotinamide riboside (NR) and co-factors experiences and results by dylan2004 (ALS Research & Treatments)	10/2/2024 12:32:06 AM
USA NIH's grant for ALS clinical trials by JPLeRouzic (ALS Research & Treatments)	10/1/2024 1:05:27 PM
model to find how tau proteins spread holds secret - block tau/NYT by jason11 (ALS Research & Treatments)	9/20/2024 11:19:09 AM
Ambroxol by murmurat (ALS Research & Treatments)	9/19/2024 8:57:36 AM
The Healey platform, a bit of history by JPLeRouzic (ALS Research & Treatments)	9/16/2024 3:37:46 AM
mucus by aabiddiorite (Living with ALS)	9/10/2024 9:36:05 PM
When to do things. by JPLeRouzic (Living with ALS)	9/8/2024 12:22:48 PM
Supplements dose management by teamK (ALS Research & Treatments)	9/7/2024 11:40:36 PM
context shift this by JPLeRouzic (ALS Research & Treatments)	8/29/2024 7:56:00 AM
One Study Explores Neuroprotective Strategies for Neurodegenerative Diseases, Including ALS by john05 (ALS Research & Treatments)	8/13/2024 7:29:17 PM

Active Users
	126 active users - 0 members, 126 guests. Most users ever online was 3069, 5/23/2023 2:50:35 PM.
Statistics
	There are 145,252 posts in 12,181 topics in 6 forums. Last post 11/12/2024 1:11:36 PM by JPLeRouzic. We have 43,608 registered members. The newest member is mtriangel.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (43 Viewing) Discuss the latest ALS-related scientific and medical findings	9,198	120,613	11/12/2024 1:11:36 PM in Could mechanical stimulation be beneficial in ALS? by JPLeRouzic
	Living with ALS (8 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,928	16,177	9/10/2024 9:36:05 PM in mucus by aabiddiorite
	ALS Advocacy (134 Viewing) Discuss strategies for increasing public funding and attention	519	3,251	3/15/2024 1:26:43 PM in The Chill "Black Woods Blizzard Tour... by mdrdan
	Military Service and ALS Discuss issues relevant to ALS incidence in the military and veteran population	62	341	1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
	Philosophy and Feedback (1 Viewing) Discusses forum philosophy and any comments or suggestions.	162	1,289	1/23/2022 2:39:44 PM in Poem by Rlschafferrr
	Irrelevant to ALS Postings deemed irrelevant to ALS by the ALS TDI Research Team	290	3,581	2/20/2024 5:25:38 AM in ALS & Parkinson's by JPLeRouzic