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BOBBYB
Posted: Wednesday, November 05, 2008 11:20:10 PM
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Veterans at Risk for Deadly Disease

TAMPA, Fla. (Ivanhoe Newswire) -- This November 11 is Veterans Day, a holiday devoted to honoring those who put their lives on the line for their country. Many veterans return from war with emotional and psychological problems, but now there's another risk -- a devastating disease that kills in just a couple of years.

As an Army sergeant, Ken Patterson was ready and willing to fight for his country. Now, he's fighting for his life. Ken has ALS, a fatal disease also known as Lou Gehrig's Disease. It attacks nerve cells in the brain and spinal cord.

"You go through anger and then denial," Ken told Ivanhoe. "I thought about ending my life."

His speech is affected by the disease. Ken's lost his ability to walk and move. His wife Glenda is always by his side.

"Without her, I wouldn't be here," Ken said.

Ken and Glenda want to know why veterans are more than twice as likely to develop ALS. They recently traveled from their home in Florida to Washington D.C. by wheelchair, a trip that totaled 940 miles. The goal of the three-week journey was to raise awareness about the link between ALS and veterans.

Lucie Bruijn, Ph.D., Senior Vice President for Research and Development at the ALS Association in Tampa, Fla., told says there could be many causes. Soldiers are often exposed to polluted air, chemical agents, radioactive waste and high-powered vaccines.

"What I think is happening in the case of the military is there is an environmental exposure and a susceptibility," Dr. Bruijn told Ivanhoe.

The lifespan of someone diagnosed with ALS is about two to five years. There's just one drug approved to treat the disease, but it only extends life by about eight to twelve weeks and costs about $1,000 per month.

"The huge frustration is no, we don't quite have the answers yet," Dr. Bruijn said. "No, we don't have the therapies."

Ken wants answers but knows he doesn't have much time left. He plans on enjoying every minute he does with his family.

"Live every day," Ken said.

In September, the Veterans Administration finally recognized ALS as a "service-connected disease." Veterans with the disease will now have access to benefits. It doesn't matter if you served in the Army, Navy, Air Force or Marines -- all have a higher risk for developing ALS.



For More Information, Contact:

The ALS Organization

(800) 782-4747

http://www.alsa.org



Ken Patterson's Web Site

http://www.kensjourney.com

http://www.ivanhoe.com/channels/p_channelstory.cfm?storyid=20085


Kaydee
Posted: Saturday, December 06, 2008 9:08:50 PM
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I myself lost a husband and father to two children. He was a proud retired army soldier with ALS subsequently dying in 2005. We tried to prove in 2001, through the VA's ALS registry this disease was service related but to no avail. After we lost of our home and savings and soo many heart aches during this process I am now learning this was, after all, military related. I am making all the contacts possible. But why hasn't this been recognized prior to now. There was no generic relationship with his case. And I, as a lay person, would realize there were outside sources. Through my research via internet this week, I have learned that Congress dropped the ball in their court with the 2001 VA-ALS registry. I really don't understand why the men and women who served and now serve this country were not on the top priority list in the White House.

Karen Davis
rknt50b
Posted: Sunday, February 01, 2009 8:54:31 AM
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charlieg
Posted: Monday, January 18, 2010 5:12:16 PM
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Joined: 1/5/2010
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Location: United States
http://www.navytimes.com/news/2010/01/military_burn_pit_011810w/
makes me wonder what else our members will come down with .
rknt50b
Posted: Monday, May 31, 2010 6:05:48 AM
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Joined: 2/9/2007
Posts: 183
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