ALS Town Hall
ALS Town Hall
The ALS Town Hall is a virtual discussion led by experts in the fields of research, patient advocacy, care, awareness building, and fundraising.
Hosted by the ALS Therapy Development Institute (ALS TDI), each event begins with brief presentations from guest speakers and then invites the community to ask questions and engage in live discussion.
See upcoming events below and click the register button to sign up.
Upcoming ALS Town Halls

The Power of Your EHR Data in ALS Research
Led by Dr. Danielle Boyce, Principal Investigator, Real World Evidence, ALS TDI

Tuesday, April 29, 2025 | 3:00 - 4:00pm ET

Discover the Power of Your EHR Data in ALS Research. Join Dr. Danielle Boyce for a Town Hall to learn how ALS TDI's ARC Study is using electronic health records (EHRs) to drive ALS research breakthroughs. Dr. Boyce will discuss the current landscape of EHR research, revealing how ALS TDI is leveraging these records to advance our research and enhance collaborations. You'll gain valuable insights through real-world case studies, understand the advantages of these data, and most importantly, learn how you can play a crucial role by sharing your EHR data through the ARC study.

Register

Thank you to our Sponsors
Cytokinetics
Biogen
MT Pharma America
Insource Services, Inc
Novartis
Regeneron
Ionis
uniQure
Previous ALS Town Hall Recordings

ALS TDI 2022 Leadership Summit Awards and Presentations

ALS TDI & Corsalex: Driving Innovation in ALS & FTD Treatments
ALS TDI & Corsalex: Driving Innovation in ALS & FTD Treatments
Patient Fellows Share Insights from ALS/MND Symposium
Patient Fellows Share Insights from ALS/MND Symposium
IGFBP7 ARC Study Updates
IGFBP7 ARC Study Updates
Share Your Experience and Advance Research Through the ARC Study
Share Your Experience and Advance Research Through the ARC Study
Tri-State Trek 2024 Town Hall
Tri-State Trek 2024 Town Hall
ALS Town Hall: Discover Roon – Your Ultimate ALS Resource
ALS Town Hall: Discover Roon – Your Ultimate ALS Resource
ALS Town Hall:
ALS Town Hall: "Light the Way" Discusses a New Approach to Genetic Testing
Unveiling the ALS Trial Navigator - Empowering Your Trial Search
Unveiling the ALS Trial Navigator - Empowering Your Trial Search
3rd Annual Fight ALS Film Fest
3rd Annual Fight ALS Film Fest
2nd Annual Fight ALS Film Fest: Augie
2nd Annual Fight ALS Film Fest: Augie
2nd Annual Fight ALS Film Fest
2nd Annual Fight ALS Film Fest

More Town Halls