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Our Research
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ALS TDI: 25 Years
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ALS TDI FAQ
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Donate
Join an Event
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Join the Fight ALS Film Fest
Thanks to the hard work of many people in the ALS community, we are proud to host the 5th Annual Fight ALS Film Fest this ALS Awareness Month.
Register now
Join the Fight ALS Film Fest
Thanks to the hard work of many people in the ALS community, we are proud to host the 4th Annual Fight ALS Film Fest this ALS Awareness Month.
Register now
About the Fight ALS Film Fest
This ALS Awareness Month, join us for panel discussions on these incredible ALS films. This series is being hosted by The ALS Therapy Development Institute (ALS TDI) and Her ALS Story. Our emcee for the events will be Sunny Brous of Sunny Strong
Please note, by registering for the film festival, you will receive weekly email reminders a few hours before the event with login information for each of the panel discussions.
We ask that all participants watch the films before the panel to have sufficient background knowledge for the discussion unless noted otherwise.
Register now
Fight ALS Film Fest Schedule
Week 1 5/5 at 7:30 PM ET – Mr. Connolly Has ALS
Summary:
Gene Connolly, a high school principal is embraced by his community as he continues to lead the school, despite rapidly losing his ability to walk and speak due to the debilitating effects of ALS.
How to watch:
You can watch this short film for free on
Vimeo
.
Panel Discussion:
5/5 at 7:30 pm EST
Panel Participants:
Dan Habib (Director, Mr. Connolly Has ALS), James Connolly (son of Gene Connolly), and Ally Davis (daughter of Gene Connolly).
Week 2 5/12 at 7:30 PM ET – Hope for Steve
Summary:
28-year-old Steve Dezember learns that he has been diagnosed with ALS. Knowing that he has little time he proposes to his girlfriend of six months, Hope. The newlyweds try to cram in as much living as possible while Steve can still walk, talk, eat, and breathe on his own.
How to watch:
You can watch the film for free on
YouTube
.
Panel Discussion:
5/12 at 7:30 pm EST
Panel Participants:
Hope Dezember (wife of Steve)
Week 3 5/19 at 7:30 PM ET – Tuesdays with Morrie
Summary:
Tuesdays with Morrie
is a memoir by Mitch Albom about his final lessons with his former college professor, Morrie Schwartz, who is dying from ALS. The book chronicles their weekly meetings, which become a "final class" where Morrie shares profound wisdom on life, love, death, and finding meaning. During this session, we will discuss both the film and the book.
How to watch:
You can watch the film for free on
YouTube
.
Panel Discussion:
5/19 at 7:30 pm EST
Panel Participants:
Rob Schwartz (son of Morrie Schwartz)
Week 4 5/26 at 7:30 PM ET – Together with ALS: A Wife's Perspective & Hope Loves Company
Summary:
Together with ALS: A Wife's Perspective
follows Liana Hubbard as she cares for her husband after his ALS diagnosis. Through love, grief, and resilience, the film offers a personal look at how ALS affects the entire family, highlighting devotion, strength, and hope.
Summary:
Hope Loves Company
tells the inspiring story of Jodi O'Donnell Ames, who turned personal loss into a mission to help others after her husband passed away from ALS. She founded Hope Loves Company, a nonprofit supporting children and young adults affected by ALS. Through community and connection, the film shows how compassion can bring healing, friendship, and hope to families facing ALS.
How to watch:
You can watch Together with ALS: A Wife's Perspective with a three day free trial on
Wildsound TV
and you can watch Hope Loves Company for free on
YouTube
Panel Discussion:
5/26 at 7:30 pm EST
Panel Participants:
Liana Hubbard (Wife of David Durnal and Executive Producer,
Together with ALS: A Wife's Perspective
) & Jodi O'Donnell-Ames (wife of Kevin O’Donnell and Founder of Hope Loves Company)
Register Now
About ALS TDI
The ALS Therapy Development Institute (ALS TDI) and its researchers quickly discover and validate potential treatments for ALS. It is the world's first and largest nonprofit biotech focused 100 percent on ALS research. Led by drug development experts and people with ALS, ALS TDI understands the urgent need to slow and stop this disease.
ALS TDI is recognized as an international leader in preclinical and translational ALS research, and partners with pharmaceutical companies and biotechs around the world. Awarded the highest nonprofit rating – four stars – on Charity Navigator, ALS TDI spends 87 cents of every dollar raised on finding effective treatments and cures for ALS.
Donate to ALS TDI in honor of the Fight ALS Film Fest
About Her ALS Story
A group of women diagnosed with ALS before their 35th birthdays to challenge the stereotype that ALS is an older white man's disease. Her ALS Story fosters an open dialogue about their declining health in female-centric media outlets; cultivates relationships with female lawmakers to improve current insurance and Medicare standards and introduce legislation to speed up the drug pipeline; and raises money for the pursuit of unbiased, supercharged ALS research to ultimately end this devastating disease. Funds raised for Her ALS Story from the Film Fest will go towards supporting their 2023 Warrior Weekend!
Donate to Her ALS Story in honor of the Fight ALS Film Fest
What is Lou Gehrig's Disease?
Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's Disease, is a progressive neurodegenerative disease that attacks motor neurons in the brain and spinal cord. This results in the wasting away of muscle, loss of movement and eventual paralysis. There are an estimated 30,000 people living with ALS in the United States at any given time. Every 90 minutes, someone is diagnosed with ALS.
To learn more about Lou Gehrig and the history of ALS research,
click here