ALS Therapy Development Institute

Additional Resources

Below is a list of additional resources from the ALS community. If you can't find what you are looking for on this page or at als.net/resources, please email us at info@als.net.

Research & Clinical Information

ALS Specific Clinical Trial Database - https://www.als.net/als-clinical-trials/
Frequently Asked Questions - https://www.als.net/als-resources/faq/
Healy Platform Trial - https://www.massgeneral.org/neurology/als/research/platform-trial-news
Glossary of Terms - https://www.als.net/als-resources/glossary/
National ALS Registry in the US - https://wwwn.cdc.gov/als
FDA Treatment Development & Approval Process - http://www.fda.gov/ForPatients/Approvals/default.htm
National Institute of Neurological Disorders & Stroke (NINDS) - https://www.ninds.nih.gov/Disorders/All-Disorders/Amyotrophic-Lateral-Sclerosis-ALS-Information-Page
Northeast ALS Consortium (NEALS) - http://www.alsconsortium.org/
PubMed Published Medical Literature Search - http://www.ncbi.nlm.nih.gov/pubmed/
ALS Untangled - https://www.alsuntangled.com/

ALS Advocacy

I AM ALS - https://iamals.org/
ALS Association - http://www.alsa.org/
Her ALS Story - https://heralsstory.org/

Patient Health & Care

Roon website and app - https://www.roon.com/
Your ALS Guide - https://www.youralsguide.com/
ALS Forum - https://www.als.net/forum/
International Alliance of ALS/MND Organizations - http://www.alsmndalliance.org/
PatientsLikeMe - https://www.patientslikeme.com/
ALS Residence Initiative - http://www.alsri.org/
Mass General Hospital Neurology Department - https://www.massgeneral.org/neurology/als/services
ALS Association Chapters - http://www.als.org/local-support
National Association for Home Care & Hospice - http://www.nahc.org/
ALS and Medicare - https://www.medicareinteractive.org/get-answers/medicare-health-coverage-options/original-medicare-enrollment/how-to-enroll-in-medicare-if-you-have-als
Applying for Social Security Benefits - https://www.ssa.gov/benefits/disability/
ALS and Social Security Disability - http://www.disability-benefits-help.org/compassionate-allowances/amyotrophic-lateral-sclerosis-and-social-security-disability
Hope Loves Company - https://hopelovescompany.org/
Compassionate Care ALS - http://www.ccals.org/
St. Peters Health Partners - https://www.sphp.com/find-a-service-or-specialty/als-regional-center/
The PHAALS Foundation - https://www.phaals.org/
Susan Mast ALS Foundation - https://www.susanmastals.org/
Team Gleason - https://teamgleason.org/pals-resource/
Hearts for ALS - https://www.heartsforalsny.org/
Consumer Affairs' Guide to Purchasing a Stair Lift - https://www.consumeraffairs.com/homeowners/stairlifts/
ALS Family of Faith - https://www.familyoffaith.center/
Home Modifications - https://todayshomeowner.com/safety/guides/als-home-modifications/

Social Media & Blogs

Facebook, ALS TDI - https://www.facebook.com/ALSTherapyDevelopmentInstitute
Instagram, ALS TDI - https://www.instagram.com/alstdi/?hl=en
Instagram, ALS TDI events - https://www.instagram.com/alstdi_events/
Twitter, ALS TDI - https://twitter.com/alstdi
YouTube, ALS TDI - https://www.youtube.com/user/alstdi
Augie's Quest - https://augiesquest.org/
Twitter, ALS Advocacy Topics - https://twitter.com/alsadvocacy
Facebook, Every90Minutes - https://www.facebook.com/Every90Minutes
TranslateALS.com - http://www.translateals.com/
BeyondALS.org - http://www.beyondals.org/
Speed4Sarah.com - http://www.speed4sarah.com/

In Pop Culture

ALS Ice Bucket Challenge - https://www.als.net/icebucketchallenge/
ALS Pepper Challenge - https://www.als.net/als-pepper-challenge/
Die Trying: VICE - https://als.vice.com/
So Much So Fast film - http://westcityfilms.com/smsf/
"Augie" documentary - https://augiesquest.org/news/documentary/
The Theory of Everything film - http://www.focusfeatures.com/the_theory_of_everything
You're Not You film - http://www.imdb.com/title/tt1198156/
Transfatty Lives documentary - http://transfattylives.com/
Augie's Quest: One Man's Journey from Success to Significance book - http://www.amazon.com/exec/obidos/ASIN/1596914688/bloomsburymag-20/

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AdditionalResources

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