ALS Forums

ALS Forum

Welcome to the ALS Forum, hosted by the ALS Therapy Development Institute (ALS TDI). This Forum is a space for community members to exchange information about living with ALS and scientific advances in ALS research.

Forum members include people with ALS, caregivers, family, friends, researchers and neurologists. We encourage an open dialogue and the sharing of ideas and opinions between all parties. Please note, this is a public forum and information posted is not the official view of the ALS Therapy Development Institute.

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ALS Topics

ALS Research & Treatments

(182 Viewing)

Discuss the latest ALS-related scientific and medical findings

9,193

120,594

Today at 12:48:51 PM
in Nicotinamide riboside (NR) and co-factors...
by Krose1216

Living with ALS

(46 Viewing)

Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions

1,928

16,174

9/4/2024 9:49:21 PM
in When to do things.
by severselective

ALS Advocacy

Discuss strategies for increasing public funding and attention

519

3,251

3/15/2024 1:26:43 PM
in The Chill "Black Woods Blizzard Tour...
by mdrdan

Military Service and ALS

(4 Viewing)

Discuss issues relevant to ALS incidence in the military and veteran population

341

1/28/2021 6:40:58 AM
in NR proposed as treatment for Gulf War Illness
by Barbarawanda61

Philosophy and Feedback

(2 Viewing)

Discusses forum philosophy and any comments or suggestions.

162

1,289

1/23/2022 2:39:44 PM
in Poem
by Rlschafferrr

Irrelevant to ALS

(2 Viewing)

Postings deemed irrelevant to ALS by the ALS TDI Research Team

290

3,581

2/20/2024 5:25:38 AM
in ALS & Parkinson's
by JPLeRouzic

Forum
ALS Topics
ALS Research & Treatments (182 Viewing)
Discuss the latest ALS-related scientific and medical findings
Topics: 9,193 Posts: 120,594
Latest Post: Today at 12:48:51 PM in Nicotinamide riboside (NR) and co-factors... by Krose1216
Living with ALS (46 Viewing)
Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions
Topics: 1,928 Posts: 16,174
Latest Post: 9/4/2024 9:49:21 PM in When to do things. by severselective
ALS Advocacy
Discuss strategies for increasing public funding and attention
Topics: 519 Posts: 3,251
Latest Post: 3/15/2024 1:26:43 PM in The Chill "Black Woods Blizzard Tour... by mdrdan
Military Service and ALS (4 Viewing)
Discuss issues relevant to ALS incidence in the military and veteran population
Topics: 62 Posts: 341
Latest Post: 1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
Philosophy and Feedback (2 Viewing)
Discusses forum philosophy and any comments or suggestions.
Topics: 162 Posts: 1,289
Latest Post: 1/23/2022 2:39:44 PM in Poem by Rlschafferrr
Irrelevant to ALS (2 Viewing)
Postings deemed irrelevant to ALS by the ALS TDI Research Team
Topics: 290 Posts: 3,581
Latest Post: 2/20/2024 5:25:38 AM in ALS & Parkinson's by JPLeRouzic

Latest Posts
Nicotinamide riboside (NR) and co-factors experiences and results by Krose1216 (ALS Research & Treatments)	Today at 12:48:51 PM
Artificial Intelligence and ALS by gocurcama (ALS Research & Treatments)	9/5/2024 8:35:38 AM
When to do things. by severselective (Living with ALS)	9/4/2024 9:49:21 PM
context shift this by JPLeRouzic (ALS Research & Treatments)	8/29/2024 7:56:00 AM
USA NIH's grant for ALS clinical trials by JPLeRouzic (ALS Research & Treatments)	8/26/2024 3:21:15 PM
Supplements dose management by Sandrika (ALS Research & Treatments)	8/18/2024 4:00:07 AM
One Study Explores Neuroprotective Strategies for Neurodegenerative Diseases, Including ALS by john05 (ALS Research & Treatments)	8/13/2024 7:29:17 PM
One Study Explores the Role of Probiotics and Microbial Metabolites in Delaying ALS Progression by john05 (ALS Research & Treatments)	8/13/2024 7:28:09 PM
Unique Structure of TDP-43 in Frontotemporal Lobar Degeneration Type A by john05 (ALS Research & Treatments)	8/12/2024 7:08:50 PM
One Study Explores Genetic Editing for C9orf72-Related ALS and Frontotemporal Dementia by john05 (ALS Research & Treatments)	8/12/2024 7:08:08 PM
Study Suggests Dietary Antioxidants May Influence ALS Progression by john05 (ALS Research & Treatments)	8/11/2024 10:12:36 PM
Trigonelline by Dalerfink (ALS Research & Treatments)	7/4/2024 1:33:24 PM
PEMF Therapy by g.rangel@aiic.net (ALS Research & Treatments)	7/3/2024 3:40:26 PM
Recent News: NeuroSense Therapeutics by gocurcama (ALS Research & Treatments)	7/2/2024 1:48:51 PM
Berberine by mdrdan (ALS Research & Treatments)	6/10/2024 2:57:10 PM

Active Users
	177 active users - 0 members, 177 guests. Most users ever online was 3069, 5/23/2023 2:50:35 PM.
Statistics
	There are 145,230 posts in 12,176 topics in 6 forums. Last post Today at 12:48:51 PM by Krose1216. We have 43,242 registered members. The newest member is eprod8080.

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Forum		Topics	Posts	Last Post
ALS Topics
	ALS Research & Treatments (182 Viewing) Discuss the latest ALS-related scientific and medical findings	9,193	120,594	Today at 12:48:51 PM in Nicotinamide riboside (NR) and co-factors... by Krose1216
	Living with ALS (46 Viewing) Life, Home, Support, PEG, Breathing, Equipment, Caregiving or Care Related Questions	1,928	16,174	9/4/2024 9:49:21 PM in When to do things. by severselective
	ALS Advocacy Discuss strategies for increasing public funding and attention	519	3,251	3/15/2024 1:26:43 PM in The Chill "Black Woods Blizzard Tour... by mdrdan
	Military Service and ALS (4 Viewing) Discuss issues relevant to ALS incidence in the military and veteran population	62	341	1/28/2021 6:40:58 AM in NR proposed as treatment for Gulf War Illness by Barbarawanda61
	Philosophy and Feedback (2 Viewing) Discusses forum philosophy and any comments or suggestions.	162	1,289	1/23/2022 2:39:44 PM in Poem by Rlschafferrr
	Irrelevant to ALS (2 Viewing) Postings deemed irrelevant to ALS by the ALS TDI Research Team	290	3,581	2/20/2024 5:25:38 AM in ALS & Parkinson's by JPLeRouzic