ALS TDI's ALS Research Collaborative (ARC) Study allows people with ALS to contribute to research without having to leave home. Through ARC, ALS TDI collects and tracks critical data which scientists use to identify new biomarkers and rapidly test potential treatments. Participants can also view and track their own data, which may help to guide decisions about potential treatments or assess the effectiveness of interventions. De-identified ARC data is shared globally with ALS researchers, further accelerating the search for effective therapies.

Learn more about the benefits of enrolling in ARC.

Getting an appointment at a multidisciplinary clinic (MDC) can be an important next step for people who are newly diagnosed with ALS. There is some evidence to support that people with ALS who consistently attend MDC's can improve their quality of life, possibly prolong their survival, and reduce hospital admissions. Through these clinics you can meet with a team of health care professionals specially trained to address the needs of people living with ALS.

Sign up for ALS TDI emails to stay updated on ALS research, learn about events and programs, and hear stories from the community. In addition to receiving our monthly newsletter, you can opt-in to receive updates on clinical trials, events, and new episodes of our Endpoints Podcast.

You can sign up for ALS TDI emails here.

Connect with others impacted by ALS at our virtual Town Hall. Featuring experts in research, patient advocacy, care, and awareness, these ALS TDI-hosted events create a space for shared learning and open discussion.

View upcoming Town Halls

Contact ALS TDI if you would like one of our team members to reach out to you directly. We can provide information about ALS TDI, ALS research, and ALS clinical trials, as well as help to answer questions. While ALS TDI does not provide patient services, we can help to direct you to third party organizations that do.