The Concept

For May 2018, the ALS Therapy Development Institute will be participating in ALS Awareness Month in a unique way; focusing on helping people learn more about what ALS really is and current ALS research.

“People know ALS as the “Ice Bucket Challenge” disease, but they really don’t know what ALS is and what it does to a person, to families, and to whole communities. We have to take advantage of the attention ALS is getting in May and elevate the drive to create awareness to a concerted effort to educate people on the disease,” said Steve Perrin, Ph.D., CEO & CSO of ALS TDI.

ALS Unfiltered

Four educational ALS Unfiltered seminars are scheduled to occur in May. ALS Unfiltered is designed to provide straight-forward, direct responses to the questions and topics that people with ALS most want to ask about. The program in May is designed to arm people with ALS with necessary information about what they can be doing right now to fight their disease, the latest and most unbiased information about emerging treatments in clinical trials such as NurOwn, AMX0035, and CK107. These seminars are led by Robert Goldstein, VP of ALS Community Engagement, who will also speak about how ALS TDI has led the field both in the validation of potential treatments in the lab as well as the identification of novel clinical trial endpoints.

  • May 1 @ 6PM – Courtyard Houston Hobby Airport, Houston, Texas
  • May 3 @ 6PM – Hilton Austin Airport, Austin, Texas
  • May 7 @ 6PM – Residence Inn by Marriott Seattle Bellevue, Seattle, Washington
  • May 9 @ 6PM – Douglas County Library, Highlands Ranch, Colorado

Earlier ALS Unfiltered sessions were held in April in Los Angeles and Berkeley, California, with additional seminars scheduled to occur throughout the summer and fall. These seminars are free and open to the public and registration for all dates can be done online here.

A special 90-minute ALS Unfiltered webinar with Steve Perrin, Ph.D., CEO & CSO of ALS TDI will occur May 16. Dr. Perrin will give the latest update on the clinical development plans for AT-1501 and will review exciting early outcomes from the Precision Medicine Program (PMP). He will talk about the long and short-term goals of the PMP and what that means for those living with ALS today and how it may affect future drug development in ALS. Advance registration required.

Social Media Coverage

All month long, ALS TDI will be seeking to educate people about ALS via social media through:

  • Instagram ‘takeovers’ by people with ALS
  • Interactive polls
  • #InThreeWords videos
  • Infographics
  • #OwnALS Initiative

The polls have been developed by people with ALS and are designed to help educate people about what ALS is really like. The #InThreeWords campaign provides anyone in the ALS community an easy way to summarize how ALS makes them feel and share it via social media, joining hundreds of others in sharing their feelings about ALS.

#OwnALS is a new initiative encouraging people to move past just being aware of ALS and to fully own the disease by encouraging people to share their stories to show the realities of living with ALS.

How To Participate

Along with sharing posts throughout the month and voting in the interactive polls, there are many other ways you can participate in ALS Awareness Month with ALS TDI on social media.

You can add our Facebook Frame to your profile photo and encourage your friends to add the frame too.

Inviting people to the ALS Awareness Month with ALS TDI event on Facebook and to like the ALS TDI page is a great way to help friends stay connected with all of the latest news from ALS TDI all month long!

For more information on planned social media educational activities, email letstalk@als.net.